Spasms3
posted by mybabybunny @ 10:05 AM
7 Comments
Thursday, October 15, 2009
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7 Comments:
it is heartwrenching to watch and I can't imagine how difficult it is to not be able to do anything to make him feel better. i just wish there was some other mom out there who can share similar experience of handling this with their child. my heart goes out to you and your hubby.
It has been difficult but there's nothing else to do but walk on. I still can't find anyone with a similar case. Its so rare. Sigh.
It really breaks my heart to see him in such pain. Have your tried contacting The Menkes Foundation at http://themenkesfoundation.org
I hope the moms over there can help and advise.
I didn't know that such an organisation existed. Have not come across it while searching online. Took a look just now and think its going to be a tremendous help. Thanks for the information. ;-)
This mom knows a lot about menkes she was the best mom a baby could have ( so are you ) if you have some time plese read that link above
http://www.caringbridge.org/md/lance/
She´ll probably helps you a lot
I´m a mother of 3 and grandma of 4
All the best
Lucia
Thanks. ;-)
I was really helpless till I linked up with moms in the US mainly via the foundation they have there for Vera's condition since there were none in Singapore. Hope you can learn more and find the much needed support from them cos they would prob know more than doctors through sheer experience.
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