Tuesday, October 13, 2009

Spasms



Mathias has been suffering from this for a couple of months already. Its not fits. So not knowing what it could be, we called it spasms. The doctors do not know too. Did a scan already and still not sure what it is. Anyways, even with sedatives given to him, he doesn't sleep at all the entire night. He will keep up the struggling or spasming as I call it. Its horrible to watch him like tt all night long. His doctors dare not give him anything stronger cause they are worried that he will forget to breathe if he goes into too deep a sleep. He is currently taking chloral hydrate. Its happening more and more frequently. Every few days or so now. At my wits end.

5 Comments:

At 9:37 AM , Anonymous Anonymous said...

Hi,

Hope Mathias is feeling better lately. Been keeping him in prayer alot. Will continue to pray that GOD will guide you to the doctor who will know what causing the spasms. Continue to trust in our LORD. " If you ever doubt if GOD still cares.. rememeber Jesus's tears..."

 
At 3:31 PM , Anonymous Anonymous said...

Hi,

Is me again. As I watch the videos you just uploaded. It reminds me of this pair of sibling in Yishun.
The suffers from seizure that seem similar as Mathias.
Did the doctor that you saw ever suspect it might be this?

Here is a link to the siblings back ground.

Hope it might show us some lights.

http://www.tzuchi.org.sg/en/News/2008/20081216.html

 
At 3:49 PM , Blogger mybabybunny said...

Actually no. They ruled out seizures as well after the brain scan.

I am posting the additional videos for his doctors to see and discuss tomorrow. Might be starting him on new sedatives.

Babies with Menkes syndrome normally have fits or seizures but he doesn't have it. They tried to determine before what was happening but couldn't. They didnt want to do another MRI so soon at that point too.

 
At 4:05 PM , Anonymous Anonymous said...

Ok, Thanks for telling me..
Will always keep Mathias in my prayer..I am a mother too so I know how you feel. Lets continue to have faith in GOD our healer..
Trust that he will grant the doctors knowledge to know what to give to make it easier for Mathias.

 
At 4:35 PM , Blogger mybabybunny said...

Thank you so much. ;-)

 

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